T.R | Title | User | Personal Name | Date | Lines |
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353.1 | a hopefully helpful answer | CRONIC::ORTH | | Thu Sep 20 1990 09:16 | 43 |
| Again, I defer to my wife, the occupational therapist, who used to work
with developmentally disabled children and adults:
Yes, retarded is still used in diagnosing a particular level of
disability. However, the more accepted "label" (if there is such a
thing as an aceepted label!) is developmentally delyaed or disabled. A
diagnosis would be made on the basis of IQ. A "normal" IQ is 100. An IQ
of between 80-100 is considered "borderline", 60-80 is considered
"mild", 40-60 is "moderate", 20-40 is "severe" and 0-20 is "profound".
Considering that up until about 25 years ago it was still considered
acceptable to use the words "imbecile" and "idiot" to describe
Profoundly and severely retarded, this system doesn't sound *quite* as
bad. Well, so what does all this mean practically? Actually, not a heck
of a lot! There are so-called borderline or normal IQ folks who can't
seem to walk and chew gum at the same time, who never function
productively in society, who never learn to read, etc. So, what does
the future hold for a mildly retarded 7 yr. old boy? He will, with some
special ed help and possible Occupational therapy, go on to quite
likely be a perfectly capable member of society. He will almost
certainly be able to read and write well enough to hold a job
independently. He will be able to learn to bank, use a checkbook, etc.
He will be able to care for his personal needs independently. He will
be able to cook, clean, manage an apt., without help. Now, he will
probably never be a top engineer, or a brain surgeon, but will be
perfectly capable of learining a skilled craft (carpentry, auto
mechanics, repair work, etc. He will not necessarly be consigned to
just menial labor (emptying trash baskets, sweeping floors, washing
dishes....please! I'm not belittling these jobs...they are obviously
necessary. I'm just characterizing them as ones that require little
skill to complete well). In short, he can lead an active, productive,
fulfilling life! Many who are diagnosed as borderline or mildly
retarded go on to marry, raise families, etc. I would urge his parents
to have him retested in several years, particularly after he can read.
IQ tests, at a pre-reading level, can be very subjective, depending on
the level of cooperation the subject exhibits that day. Actually, all
IQ tests are somewhat misleading. It is my humble opinion that they
have little to do with what a person, who is properly motivated,
encouraged, nurtured and loved, can ultimately do.
I hope this has all helped you understand your little friend. It sounds
to me as if he's very fortunate to have *you* for a friend, and I would
encourage you not to think of him any differently now, but to continue
to give him the extra hugs, love and encouragement it takes to help him
become all he wants to and can be!
--dave (and the resident OT, his wife, Wendy)--
|
353.2 | remove the stigma | WMOIS::B_REINKE | We won't play your silly game | Thu Sep 20 1990 10:28 | 13 |
| My 16 year old son is 'mildly retarded'. He is an 9 year old in
a 16 year old body. We have attempted to 'reclaim' the word
retarded so that when kids use it around him he can turn it
back on him. 'Retarded' simply means slower. Steve learns more
slowly than other kids, but he still learns. So if kids say things
like 'retard' to him, I am hoping he will get to the point where
he can just reply, that the word just means 'slow' not that
he can't learn.
There is a lovely song on this theme that I think I still have
in my directory. If I do I'll enter it here.
Bonnie
|
353.3 | IQ is only one attribute | TLE::RANDALL | living on another planet | Thu Sep 20 1990 10:34 | 13 |
| Many of the "mildly retarded" kids and adults I've known seem to
be much more sensitive than the average to what other people are
feeling and insightful about their problems. It's as though
intellectual capacity in some sense interferes with the ability to
really communicate on the emotional level.
Certainly intellectual ability is not the only skill one needs to
be a complete happy human being, nor is the possession or lack of
it a moral issue. It's just one of many attributes of being
human. It sounds like your wonderful young friend is very strong
in some of the very important aspects of living.
--bonnie
|
353.4 | Situational? | WMOIS::RAINVILLE | Parent Wanted, Perfect! | Mon Sep 24 1990 04:19 | 24 |
| A boy in our neighborhood during the summer lake season seems to
fit the 'mildly retarded' description, and is called names by our
kids and the many others who overrun our house. In spite of constant
admonishions by my wife and myself, the other kids (and us) get
irritated by his inability to stop asking questions in a high-
pitched voice, and his inability to 'remember' anything more than
5 seconds.
But one day, while a half-dozen boys clustered around me, insisting
they 'help' with some carpentry project, I saw a different boy.
I said they could hand me tools, then stay out of my way until I
needed another tool. When I said 'hammer' all the 'bright' kids,
including mine, wandered about in a daze with their thumbs up their
noses. The 'retarded' boy found, fetched and slappped a hammer into
my hand with the precision of a scrub nurse assisting a surgeon.
And so it went for an hour. Nails, slap, saw, slap, level, slap.
Soon the 'bright' kids got bored being beaten out by the 'retarded'
kid and wandered off to other more fascinating distractions.
Meanwhile, my little helper stood faithfully by, reveling in the
attention and working with a concentration and determination the
others seemed incapable of mustering.
I've not thought of him the same way since...mwr
|
353.5 | Beautiful! | NRADM::TRIPPL | | Mon Sep 24 1990 11:30 | 12 |
| Re .4, How beautiful and inspirational.
and the others, I agree that the "better" labels like "challenged" are a
whole lot easier for society to accept. Personally I can relate,
here's my son who is 3.5+ and has been rated at least a year ahead by
intellectual test, and STILL refused to be fully potty trained. My
sitter put it in prospective for me once, If he's not meeting your
expectations, then maybe it time for ME to lower MY expectations of
him! (and I did!)
Lyn
|
353.6 | Sorry, one of my hot buttons | TLE::RANDALL | living on another planet | Tue Sep 25 1990 10:01 | 12 |
| Re: .5
Toilet training has NOTHING WHATSOEVER to do with intelligence! I
hope I'm not being too emphatic or unkind, but it keeps coming up
again and again -- people thinking that because their baby isn't
walking yet, or isn't toilet trained yet, the kid isn't going to
get into Harvard Law School 20 years later. But the age at which
a child starts walking and toilet training and even talking has
no, repeat no, bearing on intelligence, intellectual capacity, or
later achievement.
--bonnie
|
353.7 | Stop endless re-euphemismizing! | MINAR::BISHOP | | Tue Sep 25 1990 12:00 | 21 |
| A different hot button for a different person: I am tired of
naive re-naming of problems!
The "label" is not the bad thing--it's the actual situation which
is the bad thing, and you can't change it by changing its name.
Thinking you can do so is believing in magic. If you're crippled
or stupid, then you have a problem. Calling you "challenged" or
"special" or whatever is not going to change the problem.
Each time a label becomes tied to a painful or awkward condition,
it acquires negative connotations, and will be used pejoratively
as an insult. This is inevitable. When well-meaning people replace
a term in the vain hope of removing the pain of insult, they don't
accomplish much (other than adding negative connotations and blurring
the definition of a previously useful word--"idiot" was once a technical
term).
I know I'm swimming against the cultural tide on this one, but
so what--sometimes the majority is wrong.
-John Bishop
|
353.8 | Me too | CSC32::WILCOX | Back in the High Life, Again | Tue Sep 25 1990 14:23 | 2 |
| John, I'm glad you entered this. I have been feeling the same
way.
|
353.9 | | POWDML::SATOW | | Tue Sep 25 1990 21:27 | 30 |
| re: .7
>If you're crippled or stupid, then you have a problem.
<Flame on mild>
I think you have a valid point, but I think you picked a couple of lousy
examples. I think you have gone to an opposite extreme. What does
"stupid" mean anyway? Would you call a retarded adult, much less a child
"stupid"? If you would, then I'm afraid that YOU have a problem. Unlike
other terms measuring intelligence, like "idiot", "stupid" has never, in my
memory, had any precise meaning, has never been used clinically, and has never
been used except as a term of derision -- unless you mean the dictionary
definition "stunned" in which case you used it incorrectly.
<Flame off>
Sometimes changes in terminology have more to do with advances in medical
knowledge than they do with attempts to euphemize. Thus, a condition once
called "Mongolism" when I was a child is now called "Downs' Syndrome".
"Senility" is now "Alzheimer's Disease".
Unless you speak Latin, language is alive, it is vibrant. The meanings of
words change. Thou canst change that, even if thou wouldst like.
I object to euphemizing, if the purpose is to ignore dealing with a
condition. But I don't object to people trying to escape stereotypes. And
to be honest with you, I think that's what most of the "euphemizing" is.
And I DO object to the use of words that are imprecise and unneccesarily
harsh -- like "stupid".
Clay
|
353.10 | All change is not good | MINAR::BISHOP | | Wed Sep 26 1990 13:00 | 27 |
| Not having an OED around, I'll assume that "stupid" has no
non-pejorative meaning and request that you replace it with
"dull-witted". My goal was to use the most strightforward
terms I could.
I have a degree in Linguistics--I'm well aware that languages
change. Not all change is an improvement. Linguistic changes,
however "natural", rarely improve the use of language as a tool
for communication. (I assume there's a "not" in your "thou"
sentence, by the way. It's also likely that the final "like"
is anachronistic and should be dropped. But this is a truely
unimportant nit.)
Unilateral re-definition of words degrades communication in a
dangerous way--consider the re-definition of "special" a decade
or so ago to mean something like "significantly sub-average in
some mental or physical measure". How did you learn this new
definition? By context, if you were like me. But for some time,
some people only knew the old meaning, while others knew both the
new and the old. This can lead to confusion when a member of the
first group says "so-and-so is special".
You don't escape a stereotype by telling people that from now on,
you want to be called "X" rather than "Y". You escape a stereotype
by changing peoples minds (your own and those of the people you meet).
-John Bishop
|
353.11 | tweaking you, JB! | MCIS5::WOOLNER | Photographer is fuzzy, underdeveloped and dense | Wed Sep 26 1990 15:06 | 18 |
| .10> -< All change is not good >-
;'D I wouldn't go that far! (More like, "Not all change is good.")
BTW, I too am fed up with the "crippled->handicapped->physically
challenged->differently abled" sequence. I assume that most of us
Parenting noters would like attitudes to change, but I don't agree that
arbitrarily changing adjectives will accomplish that. To some degree,
the "musical labels" game has prompted me to avoid speaking about
<label> people, unless absolutely necessary (explaining wheelchairs to
my daughter) for fear that I'll not be using the label-of-the-month.
*linguistics rathole alert*
...And if I hear one more person get "ENTHUSED" ... especially about a
*single* "CRITERIA"... I'll scream!
Leslie
|
353.12 | Language IS Important | USMRM4::OPERATOR | | Thu Sep 27 1990 01:32 | 32 |
|
Set/Term=Raging Inferno
********************************************************************
The term "retarded" although it means slow, has been used in a
derogatory sense for years. I agree with Clay. Words do have meanings
not in the dictionary. Some words evoke negative connotations. Doesn't
the term "developmentally delayed" convey a sense of hope? After all
folks, we don't have to live with being called a "retard". A little
seven year old boy does. He can't even read Websters Dictionary or
Roget's.
Regarding the term disabled: The person is not disabled in most cases.
This is a misnomer. I would hate to be described with an adjective be-
ginning with "dis". Because a person has a disability should not de-
tract from the ability.
Regarding the term "handicapped": This comes from "cap in hand" from
the old days when the disableds and the retards had to beg for a living
in order to survive.
*************@FLAMEOFF**************
Have a nice day,
Kate the basenoter (from another account)
|
353.13 | Ouch! This is a *HOT* one! | CRONIC::ORTH | | Fri Sep 28 1990 18:23 | 53 |
| Ooooh, my, my! This is a a HOT topic! I know my wife used to think it
absurd when they had to stop reffering to those living at the
developmental center as "patients" and begin refferring to them as
"clients". What difference did it make? Yeah, I know, a "patient" is
someone who is "sick". But that is not always the case. These residents
saw doctors daily, were frequently on medication, had round the clock
nursing care.....now how is it inappropriate to call them "patients"?
Did it make them less capable in life? Of course not. Most people
thought "clients" was ridiculous, making them sound more like someone
visiting their lawyer, or their accountant. Even those residents who
were caplable of understanding the change in terminology thought it a
dumb change, and said so.
I know of someone my age (early thirties) who has very withered legs
and leg muscles. She is unable to walk, can not get around with
crutches or braces...only with a wheelchair. She fumes at the term
"differently abled". She says, (loose quote) "I am not "differently
abled"! I am crippled! I do not do *different* things from others. I do
some of the same things, and others I cannot do at all. My *abilities*
are the same as you....it is my *inabilities* that set me apart! They
are not different! I am crippled, and if that makes you uncomfortable,
then I suggest that it is not the label you are uncomfortable with, but
me, and the way I look". I found a lot of validity in what she said.
Maybe there is a place for the newest euphemisms as they keep cropping
up. I don't know. I do know that for those to whom the
euphemisms/labels/what-have-you are applied, it makes little
difference, and they, in fact (personal experience here) often resent
the constant societal label changing game. They are what they are, and
will always have to battle with those with attitude problems toward
them. It is more a matter of (IMHO) education, that should start from
early childhood, that those who are unlike us are no less human, and
should *always* be accorded the respect, dignity and opportunites, as
far as is humanly possible, that everyone else is.
We, personally, never shush our children when they overloudly ask "Why,
does that man walk funny?", Or "Why does he look so different?" We
explain calmly that everyone is different....some people walk, some
need wheelchairs 'cause their legs don't work like ours. Some people
have been blessed with very quick thinking, and some people take a bit
longer to think things through or talk, or whatever. Deal with it
matter-of-factly, and they will too. Thsi is where it changes...the
attitudes our children get instilled into them. We happen to have
caucasian skin...our son loves "reading Rainbow", and was very
dissapointed to find out that he wouldn't get as dark as Levar, no
matter how tan he got! He has not concept that there is among many
people, prejudice to skin tone, national origin, etc., and we'd just as
soon leave it that way as long as possible. He will, inevitably find
out. Right now, he thinks its neat to see folks in wheelchairs, and
says it must be great to ride everywhere! (We have explained that those
who must use wheelchairs might look on it a bit differently!)
I've rambled and, perhaps, digressed. This is a *hot* button with
me....teach 'em right, and the label won't matter, no matter what it
is!
--dave--
|
353.14 | handicap ne begging | WMOIS::B_REINKE | We won't play your silly game | Mon Oct 01 1990 10:19 | 10 |
| in re .12
Your derivation of the word 'handicap' is one that I've seen in
other places, but it is not correct.
It originally comes from the practice of putting forfeits in a cap
in a lottery game. From this the term came to describe any hindrance
or compensation given different contestants (as in golf.)
Bonnie
|
353.15 | Until you have walked a mile in their shoes | MAMTS3::MWANNEMACHER | let us pray to Him | Mon Oct 01 1990 10:28 | 21 |
| (Climb on soapbox)
This is worse then a rathole, seems more like a toilet bowl. I do not
like some of the new words describing particular situations, but in
this case I think the reasons are valid. You're a retard!!!!! Ever
heard that on the playgroud? Most people probably have. There's alot
of stigmatism tied to this terminology. If it helps the family and
child deal with the challenges which they will face in the future to
use the terminology mentally disabled, or a slow learner, who the flip
are you, me or anyone else to inflict our unexperienced hangups on
them. (climb down off soapbox)
I know people who are slow learners who are leading perfectly normal
lives. The key is to treat them as much as possible the way you would
anyone else. Let them try things and they will have successes and
failures. Keep on encouraging them and they will be productive members
of society.
Peace,
Mike
|
353.16 | | USCTR2::OPERATOR | | Thu Oct 04 1990 03:47 | 24 |
| > in re .12
>
> Your derivation of the word 'handicap' is one that I've seen in
> other places, but it is not correct.
>
> It originally comes from the practice of putting forfeits in a cap
> in a lottery game. From this the term came to describe any hindrance
> or compensation given different contestants (as in golf.)
>
> Bonnie
Bonnie,
I heard this analogy from a number of people with disabilities and once
on TV. I think the term used in golf and bowling may have come derived
from the earlier definition. But it really doesn't matter. If
physically or mentally challenged people BELIEVE the word "handicapped"
comes from "cap-in-hand" this is reason enough, in my opinion, not to
use it.
Thanks,
Kate (the basenoter from another account)z
|
353.17 | | ULTNIX::taber | KC1TD - Monoelement 5-bander up 285 ft (ASL.) | Thu Oct 04 1990 08:59 | 21 |
| Re: .16
Two unabridged dictionaries that I looked at agree with Bonnie. There
is no indication that there is a second derivation for physical handicaps.
I don't believe it is proper to change the language because some people
don't understand the etemology of a word. To me, it seems the proper
way to handle that situation would be to educate the people who don't understand.
There seem to be two conflicting human tendencies here. The first is
the natural desire by the
handicapped/crippled/disadvantaged/differently-abled people to have a
collective noun that they are comfortable with. The second is that the
people who don't have these problems want a collective noun that THEY
are comfortable with. I don't think the latter care what it is --
they'd just like one they can use without offending someone. These
being dynamic times, and everyone having an opinion, I don't think it's
going to get settled soon. And it's certainly not going to get settled
in this notesfile.
>>>==>PStJTT
|