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Conference moira::parenting

Title:Parenting
Notice:Previous PARENTING version at MOIRA::PARENTING_V3
Moderator:GEMEVN::FAIMANY
Created:Thu Apr 09 1992
Last Modified:Fri Jun 06 1997
Last Successful Update:Fri Jun 06 1997
Number of topics:1292
Total number of notes:34837

827.0. "Partial Hysterectomy Reversal Possible?" by AIMHI::CONNOR () Thu Sep 22 1994 16:32

    I'm writing this note out of frustration and don't know were to turn
    for possible help/answere's. I will try to explain our situation the
    best I can without embarrasing myself or upsetting any other noters.
    
     My wife and I would like to have a baby,the problem is my wife has a
    child from a previous marrage and after the birth of her daughter had
    to have a partial hysterectomy. Since we have been married we have tryed
    adopting but have become very frustrated with the proccess and cost. 
    We are Foster Parents but that gives us allot of heart breaks and
    doesn't seemed to give us the results we are looking for,our own baby.
    We are now considering Surrogate Mother,we are talking with a lawyer
    and covering the legal aspects.
    
      My question is does anyone know of a proccess that a partial
    hysterectomy can be corrected. My wife tells me that she still produces
    an egg every month and has all the cramps and signs but she just
    doesn't have the tissue that the egg needs to attach too. I ask this 
    because our dream would be to have a child of our own. Medical science
    has the ability to replace organs and limbs and child birthing has come
    down to a science done in labs. Can anyone offer help/suggestions?? 
    
     We love each other so much and want a child of our own so bad. Our 
    daughter of 9 years has become a part of me since day one but she also 
    longs for a brother/sister.  I ask this question out of respect for my
    fellow noters,you are all a great source of info and WE are hoping
    someone my give us a lead or point us in the right direction.
    
     Thank You for listening and if anyone would like to contact me please
    do so @aimhi::connor or DTN 264-4304 X7116.
    
                               Jim Connor
                                                                       
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827.1NITMOI::ARMSTRONGThu Sep 22 1994 16:4314
    Jim, my wife and I also wanted children VERY badly
    and had none.  Although you have a daughter, I can really
    understand your desire both for a sibling and a baby.

    This is a very difficult issue for anyone to offer advice.
    Mine would be to continue trying to build your family
    through Adoption rather than taking extreme medical measures.

    We were able to adopt 3 beautiful children who are as much
    'ours' as any children can be.  Its a wonderful way to
    build a family.

    I wish you luck in however you proceed.
    bob
827.2try calling RESOLVEPCBUOA::GIUNTAThu Sep 22 1994 16:4317
    I don't know if what you're asking about is possible, but I would think
    that you would be able to get some answers and pointers by contacting
    RESOLVE.  They're an organization that helps infertile couples deal
    with all the procedures and such, and they may have a pointer. I don't
    have a current address anymore, but I know it's in this file somewhere.
    They used to be headquartered in Arlington, MA.
    
    Or try calling a few of the infertility specialists in your area.  In
    Boston, I can think of Boston IVF, IVF America, and one of the
    hospitals -- either Brigham & Women's or Beth Israel -- I can't
    remember.
    
    I've never heard of what you're looking for, but I stopped keeping up
    on infertility stuff after we had our GIFT twins.  Perhaps someone else
    has more up-to-date information.
    
    Cathy
827.3NOTIME::SACKSGerald Sacks ZKO2-3/N30 DTN:381-2085Thu Sep 22 1994 17:057
RESOLVE's address and phone number are in 21.122.

Is a partial hysterectomy when the uterus is removed but the ovaries remain?
If so I suspect that it won't be possible for your wife to gestate, but it
would be possible for a surrogate to carry the genetic child of you and your
wife.  RESOLVE should be able to give you information of surrogacy and any
other options.
827.4See a specialist immediately!CHORDZ::WALTERFri Sep 23 1994 12:5020
    
    While I have no experience on this subject first hand, it seems to me
    that if your wife is still producing an egg, that artifical
    insemination would be a definate possibility.
    
    Cathy's idea about going to see a infertility specialist is the first
    thing you should do.  
    
    If things don't work out and you want to adopt, I have heard every
    morning now for over a week a spot on the radio that is an adoption
    agency saying that they have babies that need families.  I will listen
    more carefully for the name.
    
    Good luck.  My prayers will be with you.  I was told after an ovary was
    taken two years ago that it would be very hard for me to get pregnant,
    if at all possible.  My birth control went out the window and three
    months later I was pregnant.  I have a healthy baby boy who will be a
    year old next month.  
    
    cj 
827.5CSC32::M_EVANSskewered shitakeFri Sep 23 1994 13:3215
    cj,
    
    You can still produce eggs, and not have a uterus, but without a
    uterus, the chances of carrying a pregnancy are slim to none.  I know
    of no technology in the womb transplantation business that would work
    for you all.
    
    I know this is hard, i had freinds go through the same thing, to the
    point that my friend was convinced she was pregnant for a few weeks.  I
    am glad she met a compassionate gyn/ob who could explain things without
    making her feel she was crazy.  The right adoption situation did come
    around for them though.  I agree with contacting Resolve.  I am sure
    they will have more ideas.
    
    meg
827.6I think it is possibleOBSESS::COUGHLINKathy Coughlin-HorvathFri Sep 23 1994 13:4241
    
    Cathy's information and places of referral are what I was going to
    suggest.  My son is a result of the GIFT procedure. I also had several
    IVF's.  If the ovaries are working, to my knowledge, your wife could have 
    the first part of an Invetro Fertilization and a surrigate to carry the
    eggs. She would be put on hormones which will make her produce many eggs, 
    at ovulation they will retrieve the eggs through a vaginal procedure 
    (done as day surgery). They mix the eggs with your treated sperm and if
    they grow into embryos (takes a few days) they will then transfer the
    embryos (usually 4 the maximum) into the surrogate.  Insurance might
    pay for your wife's medical expenses but definitely not for the
    surrogate. You would have to pay for her hormones, treatment, etc.
    during the cycle. If she became pregnant you would have to pay for the
    maternity expenses unless she had insurance and was willing to use it.
    This might surprise you but a complete IVF/GIFT  cycle when I was doing 
    this from 1989-1992 was 8-10K. Fortunately, insurance picked up these 
    charges.
    
    By contacting some of the suggested agencies you can determine if this
    is something you would be willing to do given the many things to
    consider.  It could be difficult and/or a long time to wait for a 
    surrogate. But, you never know! I think there are more women willing to 
    donate eggs rather than a uterus.  You might know someone who is willing 
    to carry embryo(s) for you (sisters/relatives/friends) and if so this 
    would likely be the speediest route.
    
    Since you mentioned you were open to adoption, and if foreign adoption is 
    a possibility I wonder if you have checked into this aspect yet. The
    waiting times might be less tho not less costly. 
    
    By the way, Boston IVF is in Brookline, IVF America is in Waltham. I
    used both of these places recommend them. Both Beth Israel 
    and Brigham and Women's (I used B&W and had negative experiences.) have 
    an infertility program.  There is also a clinic or 2 in Stoneham tho I 
    don't know their names except to say a Dr. Cardone is one of the top
    specialists in that geographic area. He used to be at one of the larger
    clinic in Stoneham and recently opened his own. 
     
    Good luck,
                                            
    Kathy
827.7try HERSBRAT::WREATH::LYNNLynn Lee @MKOFri Sep 23 1994 13:5531
    There's an organization called HERS - Hystorectomy Education Research
    (Something) that acts as a clearinghouse for information related to
    hysterectomy.  They also have an annual conference, usually in the
    Washington, DC area, I think.  I can't remember where they're based,
    but you may be able to find them through a library.  Sorry I can't give
    you specifics.  This is my last day at DEC and I can't log in from home
    with the address.
    
    I believe the focus of their work is to educate the public about the
    massive problem of unnecessary hysterectomies that occur in the US, and
    to offer information and support to women who've been told they need
    one.  But I imagine they could point you to information on options that
    women who've had them have discovered.
    
    I can understand your heartache around wanting children.  I went
    through a classic midlife crisis with my hysterectomy years ago. 
    However, as someone who recently adopted an amazing little child, I can
    say that for me the frustration was definitely worth the effort.  You
    may be aware that many support groups and resources are available for
    parents who are trying to adopt.  I'm now a very outspoken advocate for
    adoption, for a wide range of reasons.
    
    Best to you in whatever you end up doing.
    
    Lynn
    
    
    
    
    
    
827.8KEEP THE INFO COMING IT IS GREAT!!!AIMHI::CONNORFri Sep 23 1994 14:5113
    Thank You all for your reply's I know I could count on you all to pick 
    me up and get me pointed in the right direction.
     
     I have contacted Resolve,they are going to mail us info.
    I have gotten 3 GYO doctors in the MTHP in our area.
    Are goal maybe to find a Surrogate and do an egg/sperm placement since
    both are working fine.
    I would like to get more info on Adoption success stories and who you
    went through because we didn't have good luck. I would be interested in
    Adoption agency's in New Hampshire.
    There is hope and thank you all for your input.
    
                           JC