T.R | Title | User | Personal Name | Date | Lines |
---|
362.1 | Support sometimes isn't enough | JUPITR::MAHONEY | Just another tricky day | Tue Oct 20 1992 14:30 | 34 |
| First, let me offer my deepest sympathy to your friend.
Second, I know of a women who went through this 2 years ago. She was
told during an ultrasound at 5 months, that half of the baby's brain
was missing. Horriible situation. She does not beleive in abortion
but was told that if she proceeded with the pregnancy the baby would
probably not survive for more than 24 hours after delivery. She chose
to carry full term. For her own reasons, she hoped that the ultrasound
was wrong and made it through the 9 months. I don't actually
know what kind of support she received through all this, but I do know
that no matter how much support she received from friends and family
it was never quite enough. Unfortunatly the ultrasound proved correct
and the child did not survive past 24 hours. She id doing great these
days and is thinking about having another child. She has 1 son 6 yrs
old.
All of us who have been pregnant have all had this terrible fear that
something like this would happen, and to honestly tell you, i still
don't know what I would do if I were in that position. But is it better
to go through with it and find the situation to be what the doctoras
said it would be, or to end it and never know if the child were to be
born healthy?.......I just don't know.....
Prayers,
Sandy
|
362.2 | Just Listen | POWDML::PCLX31::Satow | GAVEL::SATOW, @MSO | Tue Oct 20 1992 15:02 | 20 |
| > What can I say? I don't remember exactly what I said to her last night,
> I was rattling trying be supportive and she thought I was saying something
> to the effect of "You should have quit while you were ahead". I just don't
> know what to say.
Perhaps the best thing to say is nothing; just listen. That's terribly
difficult to do under the circumstances. I'm sure that the reason the you
"rattled" was that you didn't know what to say, and were uncomfortable. When
you're with her, or when your on the phone with her, silence must be very
difficult, but it may be the best thing, if it gets HER to talk. I doubt
that she needs advice. What she needs is someone who will listen to her non-
judgmentally. Given your own feelings on abortion, and the fact that you've
been able to be supportive before, you seem like the kind of person who could
do this; that's an ability that is rare, and that I would think she is in
desperate need of now.
If you haven't read it yet, I found the book "When Bad Things Happen to
Good People" by Harold Kushner to be very comforting.
Clay
|
362.3 | | BOSEPM::DISMUKE | Are we pressing any HOT BUTTONS? | Tue Oct 20 1992 15:21 | 16 |
| Your friend is in a tough situation. She and her spouse have to make
these decisions themselves. They should get all the information
possible, listen to all the experts and make their own decisions. Keep
in mind that doctors are people too and have been wrong. I know
several people who's doctors told them it would be best to terminate
and now have healthy happy children.
My personal belief is that when the road gets tough somehow we find the
extra that it takes to climb it!
Good luck to you and your friend and may they make the best possible
decision!
-sandy (who also is waiting for that little girl)
|
362.4 | | PHAROS::PATTON | | Tue Oct 20 1992 17:00 | 16 |
| I guess what I would do is to help her give herself time to live with
the reality, if the problem is really there; to take an emotional deep
breath. She must be in the first phase of shock, right now. (By the
way, that doctor needs some sensitivity.)
I *think* what I would do if I were in your friend's situation would
be to wait for confirmation of the baby's problem, then give myself
time to come to a decision. I'm not the type who knows what to do
immediately when fate deals me a surprise. I think I would seek out
other parents of handicapped/disabled kids and listen to their stories.
She may find it helpful to hear how families live their daily lives
with disabilities...
Good luck and let us know how things are going,
Lucy
|
362.5 | | PHAROS::PATTON | | Tue Oct 20 1992 17:06 | 8 |
| I forgot to mention that I do know a family whose second child
was born with severe problems, comparable in type to your friends'
(or worse, since it is also facial). I have been very impressed
with how they have come to live with their son's disabilities.
I know they are plugged into a lot of support groups and agencies
in the Boston medical world.
Lucy
|
362.6 | | WILBRY::WASSERMAN | Deb Wasserman, DTN 264-1863 | Tue Oct 20 1992 17:16 | 5 |
| Just a small comment... A friend of mine recently chose to terminate
her pregnancy at about the 19th week, and I don't think she had to
deliver the baby. The procedure was done as an outpatient, and she
was back on her feet the same day. Your friend should discuss the
procedure with her doctor, if it's an option she's considering.
|
362.7 | | SUPER::WTHOMAS | | Wed Oct 21 1992 10:22 | 38 |
|
I have thought a lot about this note since it was entered.
I am in my fifth month of pregnancy and I've tried to figure out what I
would do under the given circumstances.
*If* the baby just had a physical abnormality, I could handle it. After
all I was born fully operational and become disabled following an
accident. (granted on a scale, mine is a minor (if there is such a
thing) disability). One's physical health is never guaranteed even
if you are born "normal". Without reservation, I would continue the
pregnancy.
*If* the baby not only had a physical but also a mental handicap, I'm
not sure that I would be able to cope with that situation. I'm fairly
certain that I would choose to terminate the pregnancy.
*If* they could not tell if a mental handicap was present, I would not
know what to do.
On the other hand, I'm also not sure after having delivered a beautiful
son, that I could terminate any child of ours, no matter how dire the
conditions were.
I guess that I would ask for lots of confirmation tests, find a support
group, read everything in sight, and then agonize over what to do. My
inclination would be to accept what was dealt me as I have always
believed that everything happens for a reason. On the other hand, I am
not alone and I would have to figure in the lives of my husband and
child and how they would be affected. I honestly don't know what I
would do and I can only pray that I never be put in this situation.
I have no answers, I can only give support to your friend and know that
whatever choice she chooses it will be the right one for her.
Wendy
|
362.8 | An update from the basenoter | CNTROL::STOLICNY | | Wed Oct 21 1992 10:29 | 59 |
|
The following is an update from the anonymous basenoter. I'm sure the
PARENTING readership will join me in extending our sympathy to the basenoter
and her friends' family.
Carol Stolicny, PARENTING co-moderator
---------------------------------------------------------------------
First of all, I'd like to Thank everyone for the replies...I tried to
sit back and just listen...
I spoke with my friend last night. She had the second ultrasound and
they told her the baby definately does not have arms and also is brain
damaged. It has a condition called Hydrocephalous. Her Dr. gave her
and her husband their options (this is not for those with weak stomachs):
1) Keep the baby and do the best you can
2) Have a normal abortion. This will cause the fetus to be
taken out in pieces; or
3) Be induced. They will insert kelp (seaweed) into her cervix,
send her home for 24 ours and then take her in and give her
Ptosin (spelling?)and go though a "normal" delivery. The Dr.
assured her that they will not be performing any heroics to
save the baby and they will wait for it to die.
They chose #3. I have the impression that she feels like if she chooses
#2, the baby will really suffer, and if she chooses #3, she will suffer
and that is part of the reason they chose #3. They also want to perform
an autopsy. They said that they can't tell her why this happened but
they can pretty much figure out when.
During the Ultrasound the Drs were talking and they said the baby had
two perfectly formed legs and the feet were also perfect and they were
talking about his toes. The chances of this happening to her, with her
age, good health, etc is like 1 in 57,000. They can't figure out why
this happened.
Yesterday was the first time she saw her husband break down and cry.
They are both terribly upset. The Dr told her she has 2 weeks to get
this procedure done, otherwise it's illegal. I'm not sure why, but
maybe it's because the baby could live on it's own if it was done later?
The procedure is going to cost between $800 - $2000 dollars. They don't
know if the insurance will pay for it. Having this child will not
endager her life, and that is the only way they would normally pay...but
that's another issue they're going to have to deal with. Plus they need
to find a hospital to perform the procedure. They know Brigham and
Womans will, but that's so far away. I hope they don't put her in the
Matarnity Ward when they do this.
I feel so bad for her. She told me that if it was just that the baby
had no arms, she'd have kept it and dealt with it, but she just can't
deal with everything else.
Should I send her flowers once she's in the hospital or would that be
totally inappropriate? What can I do to help her through this, besides
just listen...
Thank You all for listening, too
|
362.9 | suggestions | TNPUBS::STEINHART | Laura | Wed Oct 21 1992 10:40 | 14 |
| I don't know what would be appropriate to do when your friend is in the
hospital. Why not contact the hospital social worker and ask him/her
to make recommendations based on experience in previous cases?
I'm sure she would appreciate your presence and help when she comes
home from the hospital. Perhaps make a casserole, do the laundry, or
just be available to console her and her husband.
They will be in mourning, so I imagine protocol (when she comes home)
is much like comforting and helping any mourner. I think the most
important thing is to acknowledge the enormity of their loss and
suffering, and be with them while they heal.
L
|
362.10 | | SUPER::WTHOMAS | | Wed Oct 21 1992 10:46 | 20 |
|
Yes, I think that flowers are appropriate as is anything else that
you feel is the right thing to do.
If it were my friend (assuming that this is a close friend) nothing
could keep me from being with her and talking (or being quiet) or
holding her hand, or helping out at home or maybe just leaving her
alone. My point is, *you* will know best how to help your friend (and
if she is doing this much confiding in you already, it sounds like you
have already helped her enormously).
Given the circumstances, I would most probably have made the same
decision and just the thought of that makes me want to weep, I can only
imagine the pain your friend and her family is going through.
Please let her know that others care and are sending best wishes
(if it is appropriate) and please let us know how things turn out.
Wendy
|
362.11 | Sincere Sympathy! | MACNAS::BHARMON | KEEP GOING NO MATTER WHAT | Wed Oct 21 1992 11:25 | 5 |
| I offer my deepest and sincere sympathy to your friend, her family and
to you.
Bernie
|
362.12 | | TANNAY::BETTELS | Cheryl, DTN 821-4022, Management Systems Research | Wed Oct 21 1992 11:30 | 1 |
| I am so so sorry.. ccb
|
362.13 | I am terribly Sorry. | PINION::MARRAMA | | Wed Oct 21 1992 11:42 | 6 |
|
I am to very, very sorry..
Kim
|
362.14 | | PHAROS::PATTON | | Wed Oct 21 1992 11:49 | 6 |
| This is so very sad. You sound like a good friend. Your presence will
help very, very much.
Keep writing, if you feel up to it.
Lucy
|
362.15 | | ROCKS::LMCDONALD | | Wed Oct 21 1992 12:11 | 23 |
|
I am so sorry for your friend. There is nothing that I can say to make
any of this easier for her or you. Just know that there are people out
here who care.
The hardest thing I ever had to do during my time working in Labour and
Delivery was to take care of a woman with a very similar problem. The
difference was that this 5 month old fetus had died already. When the
child was delivered, we could see that he had multiple severe external
physical abnormalities and (since he had died) probably severe internal
abnormalities. Though we tried to talk him out of it the father wanted
to see the baby (the mother declined). Although we had explained all
the problems in detail, I think the poor man was quite shocked. As
with all of the infants who died on our unit, we made up name bands and
took footprints for the parents to keep. (a photograph in this case was
inappropriate). I still cry for this little one every time I think of
him.
Sometimes just having someone to cry with is the biggest help of all. My
heart goes out to you, your friend and her family.
LaDonna
|
362.16 | been there as a friend,too. | NIODEV::MIDTTUN | Lisa Midttun,285-3450,NIO/N4,Pole H14-15 | Wed Oct 21 1992 13:48 | 34 |
| First, let me say that my heart goes out to your friend. What a
terribly difficult thing to have to deal with. Whatever she and her
husband decide, they have a tough road ahead and will need all the
support they can get.
About 2 years ago, an almost identical thing happened to a good friend
of mine. (Actually, I was a classmate of the husband, hadn't even met his
wife at the time). The poor guy happened to blurt this out at a class
break after one of us asked how his wife was doing. She was about 5
months along at the time. They were told that the baby was severely
deformed and would be prematurely delivered and stillborn. They also were
given the same options that you noted in your reply (.8). This was
after they had visited a second specialist to be sure about their
situation. (I'd suggest this to your friend, in any event.) I'm not
sure how I'd discuss this with your friend if I were you, but I wanted to
pass on that they had chosed option #3 (inducing the baby) but it didn't
work. So, after a (painful) day or so on Pitocin, they ended up with
option #2 (surgical abortion) the next day or so. I guess my point here
is that if they chose this route, I'm hoping the doctor's will point out
that their '1st choice' might not work. This way they could prepare
themselves a little if things don't go as planned.
Since we didn't find out about this until after the surgery was over,
I didn't feel that flowers were the way to go. What I did do was to
send a card to the both of them to express my sympathy. (Sometimes it's
easier for me this way than in a conversation.) In a return note, my
friend's wife made it clear that she wanted and needed to talk about it.
I found that by asking my friend directly or calling them occasionally
to find out how they were doing, and then just listening to them, we all
became much closer friends. I just let them take the lead on when to
open or close the subject. I guess my point is, make sure try not to run
away from them or their situation, whatever they choose.
|
362.17 | Reply from basenoter | CNTROL::STOLICNY | | Thu Oct 22 1992 15:15 | 40 |
|
The following reply is entered for the anonymous basenoter.
Carol Stolicny, PARENTING co-mod
----------------------------------------------------------------------
Thank you all for your support and well-wishes via E-mail and this notes
conference. I wish I could share all of your replies with her, but I'm
sure she would feel betrayed that I discussed this in an open forum even
though I was an annonymous particpant. I am trying to slip some of
your suggestions/comments into our conversations but I'm not telling her
the whole truth. Maybe later I can...
I talked to her for a few minutes during lunch today. She had company
so that made me feel better. She is scheduled to have be induced
tomorrow so she can deliver the baby. She was told that she should
expect discomfort, nausea & the trots.
She is making a list of all of her questions and she said so far she has
2 pages. She told me she isn't sleeping. She decided not to go to
B&W's Hospital because she didn't want to wait until Monday to have this
done. She can't stand the waiting. I was told the hospital she chose
is a good one and told her that, besides she is feeling very
comfortable with her decision and that's all that's important at this
time.
They are going to deliver her son and let her hold him, and grieve.
Now she doesn't know if she should or wants to. I told her I thought it
might be a good idea because then she would know that she did the right
thing and not imagined this child to be a perfecly healthy baby boy.
She said that's what her dr told her too. I'm afraid if she doesn't,
she'll always wonder if she did the right thing, but I didn't tell her
that.
She asked me to call her back tonight because she didn't think she'd be
quite so chipper. She thought she might need me then.
Thank you all for all of your support & prayers. I kinda wished that she
had a religious background, I think it might help her get through
something like this. Thank God at least her husband does so then he can
help her somewhat...maybe.
|
362.18 | | GAVEL::SATOW | | Fri Oct 23 1992 11:13 | 28 |
| The following note is being posted by a noter who wishes to remain anonymous
When I first started reading this I prayed to God and thanked him for
my new healthy baby and for my 2 very healthy older children. I sat
in my office and cryed for a woman I thought I didn't know. I received
a phone call last night from my boyfriends mother. She began to tell me
about her younger daughter. I sat in horror as I realized it was
my boyfriends sister that I had been reading about all week long.
I am still in shock, I have been crying and praying since last night.
Her family did not want to tell me until things were confirmed
because they did not want to upset me and her brother if things
proved to be wrong.
I just want to thank her friend for caring enough to start this note
looking for advise on how to help. Well I don't know how to help
other than to just let her know I will be there for her if she needs
me.
As far as I know she is going to the hospital today. If we just
take a moment to say a small pryer that it will not last long,
and to give her srength, We are already doing much more than actions
can do.
If the creater of this note wants to talk to me please contact me through
the moderator who posted this note.
|
362.19 | tears | KAOFS::M_FETT | alias Mrs.Barney | Mon Oct 26 1992 13:58 | 25 |
| Dear basenoter and author of .18:
I am sitting here crying for mom, for the family, for the baby.
It would be callous to say I think I know how she feels, for each
person's loss is their own, all grief is very personal.
Hugs and support are the best now, getting the parents to talk about it
if they wish is best. Some hospitals also have grief counselors (get
their doctor to recommend one).
Something personal: when I first found out about my first baby's death
in utero, I wanted to ignore the idea that it was a person I was
loosing. But once I was able to acknowledge Daniel as my baby, a person
who died, I felt that I could get through the grieving.
I only decided at the last moment to see him in the hospital after the
delivery (32 hours of labour after waiting a week, knowing he had died
in the 8th month). I will never regret the decision, I would have
wondered until my dying day what he looked like, what he felt like.
They kept him wrapped up and I saw his face and kissed his forehead to
say goodbye.
It was a very important ritual for me.
Again,
The deepest of feeling for all....
Monica (who is having the darnest time to stop crying!)
|
362.20 | How are they doing? | NEMAIL::FLAHERTYL | | Tue Nov 17 1992 08:48 | 6 |
| This is for the creater of this note. Just wanted to know how mom and
the family are doing. I think we all would like to know how she is
doing and to let them know that they are in out thoughts.
Linda
|
362.21 | Reply to last from anony basenoter | CNTROL::STOLICNY | | Tue Nov 17 1992 14:47 | 9 |
|
The following reply is being entered for the anonymous basenoter.
Carol Stolicny, PARENTING co-mod
--------------------------------------------------------------------------
The mother and family are doing fine. All are trying to get back to
life as they knew it before this tragedy took place. Thank you for all
the well wishes.
|
362.22 | Will he just do one if I ask? | RINGER::WALTER | used to be Aquilia | Wed May 12 1993 11:14 | 9 |
| I assume from reading these notes that an ultrasound at the fifth month
is normal procedure. I have my fifth month appointment in a week and
have asked the nurse if I was to have one. Her reply was, "AFP test
came back normal, there is nothing going wrong so the doctor probably
won't order one". After reading these notes, I would like to have one
and feel that I should be allowed. Any advise?
cj
|
362.23 | depends on the doc | KAOFS::M_BARNEY | Formerly Ms.Fett | Wed May 12 1993 12:17 | 11 |
| Even in Canada where the medical system is different, it all
depends on how flexible the doc is. Some, thinking that the
mother's state-of-mind is part of the health of the pregnancy,
will give in to any pressure from the mother to have an ultrasound.
Others would consider it only necessary if some medical reason
were present, and would not order one on any other basis.
If YOU feel strongly that for the health of you and your child
it is important, let the doc know about your feelings.
Monica
|
362.24 | | MOIRA::FAIMAN | light upon the figured leaf | Wed May 12 1993 13:18 | 8 |
| Note that the relevant medical associations do *not* recommend the use
of ultrasound as "standard" practice, if there are no other medical
indications for it. That is, ultrasound is appropriate when there
is some reason to believe that it might detect something that it would
be important to know about; it is not recommended just "on general
principles" or "to make sure everything's ok".
-Neil
|
362.25 | | MCIS5::WOOLNER | Your dinner is in the supermarket | Wed May 12 1993 13:30 | 5 |
| I think the doctor might "let" you have one, but I also think if the
doctor hadn't recommended it in the first place, your insurance might
"let" *you* pay for it.
Leslie
|
362.26 | | NASZKO::DISMUKE | WANTED: New Personal Name | Wed May 12 1993 14:08 | 10 |
| I had an ultra with my first because there was a question on
gestational age. I had none with my second. There was no question of
his gestational age, but he was predicted to be a big baby - and by
comparison, he was.
If there isn't any concern, then I suggest leaving things alone. "If
it ain't broke, don't fix it!"
-sandy
|
362.27 | But the others didn't have previous problems | RINGER::WALTER | used to be Aquilia | Wed May 12 1993 14:33 | 11 |
| Why did the previous noters have an ultrasound then? I thought from
reading their notes that it was general practice. One noter specified
that they didn't know why what had happened happened, but it was a 1 in
57,000 chance that it would happen to anyone. Unfortunately for this
poor women she found out some awful results. It didn't seem to me
that they had concern for anything before the test.
I am still confused.
cj
|
362.28 | Differs from state to state | PMASON::ANDERSON | There's no such place as far away | Wed May 12 1993 14:43 | 9 |
| It really depends on where you are located, and the general belief of
your doctor. Where my sister is in NJ, ultrasounds are done at (I
think) 19 weeks unless the expectant mother refuses. One of the
reasons, according to my mother, is for malpractice suits - and because
such large number of the mothers demand them. When I had Russell almost 3
years ago in Concord Mass, they hadn't planned on doing one at all. I
wound up with one at 26 weeks to rule out twins.
marianne
|
362.29 | | MCIS5::WOOLNER | Your dinner is in the supermarket | Wed May 12 1993 15:48 | 9 |
| My doctor, in central Mass., did mine at 20 weeks "to determine fetal
age." Apparently he didn't believe me when I told him I *knew* when
conception took place!
Due date determined by me: Jan 14
" " " " doc: Jan 11
Alexandra born Jan. 19
Leslie
|
362.30 | in Canada | KAOFS::M_BARNEY | Formerly Ms.Fett | Wed May 12 1993 17:49 | 10 |
| In Montreal, 2 ultrasounds are done usually, one at 19 weeks and
one at 26. Here in Ottawa there is one done at 19 weeks only.
But for Charlotte, I had one at 19, one at 26 (diagnosed gall
stones) one at 29 and one weekly for the last 5 weeks, mostly
because by definition I was in a high risk group, having lost
my first at 33 weeks.
To tell you the truth, each one of them was a wonderful reassurance
to me that Charlotte was okay.
Monica
|
362.31 | Lots of Ultrasounds Here! | NEWPRT::SZAFIRSKI_LO | IVF...I'm Very Fertile! | Wed May 12 1993 18:36 | 20 |
| I think that I could almost set a record for ultrasounds during my
pregnancy.
Since Chelsea was conceived via IVF, we had ultrasounds at the ferility
doctor's office from week 5 thru 12 (one a week).
On to the OB who did an ultrasound at week 13.
Another at week 18 prior to the amnio...and another during the amnio
at week 20.
Due to decreased fetal movement at week 30 we did ultrasounds twice a week
all the way thru to week 40 (my last one being the day I went into
labor!)
I loved having the ultrasounds....it was great to watch her on the
screen...I could have stayed on that bed all day just watching my baby
girl do her tricks.
..Lori
|
362.32 | routine practice in UK | LINGO::MARSH | The dolphins have the answer | Thu May 13 1993 05:27 | 45 |
|
Maybe I hold the UK record?
6 weeks - internal ultra sound when I lost the twin to check there was
still something there.
8 weeks - as above, saw a heart beat.
10 weeks - as above, saw a lot more.
18 weeks - anomaly scan due to raised AFP - looked OK. Had 5 folks
looking at the screen including THE consultant for THE scan unit for
the UK (John Radcliffe in Oxford). The baby had a great time showing
her bottom to these folks!!
20 weeks - repeat of week 18 - all OK (at this point we went ahead with
decorating the baby's room and buying baby gear).
37 weeks - cannot locate head on small scan to see if ready to engage,
so have huge scan in daycare unit. Detect transverse breech with arm
over her head. I loved this scan - the baby was saying, I'm ready, but
stuck, get me out!!
37.5 weeks - repeat of 37 weeks - has not moved, go ahead with planned
c-section on at 38.5 weeks.
I found having a scan very comforting. In my case in proved I was still
pregnant after the loss of the twin as there was a healthy sac in
place. Once I had seen the heartbeat, I fell in love with the little
bundle of cells :-)
The later scans proved all was well inspite of the high AFP and showed
her position which made a vaginal delivery impossible. I am so glad
they detected her position before I went into labour!!
The 18 and 20 week scans are the first photos in Rebecca's album!!
Scans are common practice in the UK - think you have to say if you
DON'T want one. It's a great experience and makes the baby seem a lot
more real if you have not felt movement yet and only have a tiny bump!!
If it's offered, I'd go for it!
Celia
|
362.33 | Good to diagnose other things too! | GVA05::BETTELS | Cheryl, DTN 821-4022, Management Systems Research | Thu May 13 1993 07:31 | 8 |
| I think they are standard here also. Seems everybody has at least one
to confirm the age. In my case it was very fortunate because it also
diagnosed the placenta gravia condition that I had. That condition
along with the fact that Dirk was breech and the fact that I had a
borderline hip separation decided the caesarian that I had. I doubt
they would have seen that without the ultrasound.
Cheryl
|
362.34 | My doctors have been a "little" more conservative | MARX::FLEURY | | Thu May 13 1993 08:50 | 24 |
| Many practices here in New England are pretty conservative when it comes to
giving ultrasounds. I am on my second pregnancy - with my second set of Drs.
Both practices had a policy of NOT giving ultrasounds unless there was some
medical reason to do so. The reason given at both practices was
"Although there is absolutely no medical evidence that ultrasounds are
dangerous to mother or child - neither is there absolute proof that they
are safe. We see no reason to run an unnecessary test - only to find out
in 10 or 20 years that there were, indeed, harmful side-effects unknown
at the time"
Of course - both practices were pretty liberal about what they considered
"necessary" reasons for giving an ultrasound. They frequently ordered an
ultrasound just because they weren't sure about gestational age. And ANY
hint of problem (AFP test results slightly out of range) guaranteed an
ultrasound.
If you really feel strongly that you want an ultrasound - by all means push
for one. As a previous noter replied - the worst that can happen is that
you have to pay for it yourself. But my guess is that your doctors haven't
ordered one because they really believe you and your baby are in excellent
condition.
- Carol
|
362.35 | Undue burden on medical insurance? | CNTROL::STOLICNY | | Thu May 13 1993 09:14 | 16 |
|
The doctors' practice that delievered my son was adamantly against
giving ultrasounds as standard operating procedure. They did not
believe in billing insurance companies for "unnecessary" procedures
(now that was a refreshing change!). However, if there was any
hint that the expectant mother was uptight about the progress of
the pregnancy, they would do an ultrasound to ease her fears.
Of course, this is the same practice that did NOT induce me 24 hours
after my water broke but waited it out to see if I would go into
labor on my own - which I did 3 days later! Their thinking was that
the incidence of C-sections goes up dramatically with induction so,
in the absense of infection, preferred to let nature take its course..
oops, sorry to digress!
Carol
|
362.36 | they don't always do ultrasounds | MEMIT::GIUNTA | | Thu May 13 1993 09:31 | 26 |
| I had an ultrasound at 7 weeks to see how many babies there were since I
got my twins via GIFT (could have been triplets!). I had another one done
at 12 weeks because I had some serious spotting which turned out to be
abrasion on the vaginal wall due to the progesterone suppositories (why
don't they tell you that's a side effect of the progesterone). Since I
was having twins, I had another one at 20 weeks to check on their growth
as the doctor wanted to be sure they were growing at the same rate, and I
was scheduled for another at around 28 weeks for the same reason, but I
delivered instead. I also had an ultrasound in the hospital the day after
my water broke to check on the babies and see if they had to take them,
or if I could try to hold out. That turned out to be the day before I
delivered.
I also had an ultrasound during delivery to watch the second twin to
see where he was and why he wasn't coming out. Turned out he decided
he wanted to stay, and although he had been in the correct position for
a natural delivery, folded up once Jessica had left, and had to be
delivered via C-section.
I understand that ultrasounds are more common for high-risk pregnancies
such as those gotten through IVF or GIFT, or where there are more than
1 baby, or if the doctor has a reason to be concerned and looks for
something. They don't seem to be a matter of course if the pregnancy
has no problems.
Cathy
|
362.37 | | GOOEY::ROLLMAN | | Thu May 13 1993 09:54 | 39 |
|
I had two ultrasounds with each pregnancy because I had
amniocentesis with both. They did one to determine how
old they were, and the second was during the actual
amnio.
However, with Elise (the first), I developed Pregnancy
Induced Hypertension, and was put on bed rest for 5 weeks.
During that time, Elise was at risk because the
PIH ("official" terminology for high blood pressure
during pregnancy) stresses the placenta and they
kept checking it to make sure Elise was still getting
enough support from it. So all total, I had about
8 ultrasounds with Elise. The ultrasounds were in
addition to weekly non-stress tests.
Personally, I got pretty good at reading the ultrasound
monitor, and the doctor who would run in for 30 seconds
during it was good about explaining what he saw and how
he could tell the placenta and cord were ok. By the
end, I was able to see how the placenta and cord were
aging (at a normal rate).
With Sarah (the second), the only ultrasound was
the one to determine gestation, and then again
during amnio.
A slight digression: lest this be confusing, both babies
were completely normal, I did the
amnios because of my age - I was 40 when Sarah was born.
Another digression: I have read somewhere, but can't
remember where, that fetus aging by ultrasound has
been shown to be statistically no more accurate than
the mother's calculation and the doctor's wheel. I
will try to remember where I read this.
Pat
|
362.38 | | CNTROL::JENNISON | John 3:16 - Your life depends on it! | Thu May 13 1993 10:00 | 17 |
|
Carol,
I was going to say the same thing (undue burden on medical
insurance).
Ultra-sounds are useful and can be comforting and enjoyable
(I had three, one to check for twins, one because of bleeding
at 28 weeks, and one just before induction, to be sure we weren't
wasting our time on a baby too big to deliver vaginally).
However, we all pay for these ultrasounds one way or another.
If we don't pay for them directly, we'll be paying for them
through increased weekly payments to our HMO's or insurance
companies. I'd say if there's no indicated need, skip it.
Karen
|
362.39 | Small sonograms instead of big unltrasounds... | WONDER::MAKRIANIS | Patty | Thu May 13 1993 12:23 | 15 |
|
With my first pregnancy I had one at 11 weeks to check on dates/age,
at 12 weeks I started spotting. After waiting and numerous blood
tests they did another one at 15 weeks to check on things and there
was no baby.
With my second pregnancy I went with a different practice that
specialized in OB/GYN. They had small sonogram machines in the office.
At my 10 week appt. we looked at things to give me peace of mind.
At ~36-38 weeks they did another to check on the position of the baby.
Both of these were done in the office and I didn't have to drink any
water. I thought it was much better than the big ultrasound done in
the hospital since I wasn't uncomfortably bloated.
Patty
|
362.40 | $350.00 | MVBLAB::TRIOLO | | Thu May 13 1993 14:03 | 8 |
|
FYI, The bill for my ultrasound was $350.00 (which was picked up
my insurance) because they were checking a problem at 8 weeks
(looking for the heartbeat because I was spotting). I thought the
ultrasound was really cool (because we did see the heartbeat).
It was not done as regular practice but they were pretty liberal
if you really wanted it done.
|
362.41 | thanks for all the advise! | RINGER::WALTER | used to be Aquilia | Thu May 13 1993 14:07 | 4 |
| What is the difference between an ultrasound and sonogram?
cj
|
362.42 | they're the same | MEMIT::GIUNTA | | Thu May 13 1993 14:24 | 3 |
| Same procedure, just a different name. I think that ultrasounds used
to be called sonograms when they first came out, and the name changed
somewhere along the line. I don't believe there is any difference.
|
362.43 | | WONDER::MAKRIANIS | Patty | Thu May 13 1993 14:33 | 8 |
|
Yes, I guess they do the same thing, but I didn't have to drink any
water at all before the ones I had done in the doctor's office. I had
always thought you had to drink the water to make things look right.
Maybe the technology has advanced enough that they don't need you to
drink anymore.
Patty
|
362.44 | To drink or not to drink ....? | BCSE::WEIER | Patty, DTN 381-0877 | Thu May 13 1993 15:09 | 25 |
|
I had an ultrasound at 18 weeks, and I was supposed to drink the water.
I did, and part way through the ultra-sound, I was *SO* uncomfortable
the tech let me up to go the bathroom. She finished it with me having
an empty bladder, and it REALLY didn't seem to matter.
The reason for the water, I've been told, is because when your bladder
is full, it puts the baby in a better position for them to see.
I also had one done at 17 weeks, with an amnio, and I didn't need to
drink any water, and they could see the baby fine, could see the heart
beating, and we were even counting fingers. I'm not convinced that the
water makes much difference.
AND, I had one done at 12 weeks to check for a heartbeat, again I
didn't need to drink the water, and again, they could see everything
fine. Perhaps it's not REALLY necessary?
BTW -The amnio/ultrasound at 17 weeks was because of a low AFP (test
came out fine, Thank God!), and at 18 weeks was because I'm diabetic,
and they wanted to do a "high risk" ultrasound to check major organ
development.
Good Luck!
Patty
|
362.45 | | GOOEY::ROLLMAN | | Thu May 13 1993 15:10 | 15 |
|
The water is needed only for early ultrasounds, because the
fetus is so small. A full bladder pushes against the uterus
and stretches the wall slightly, which makes the fetus kind
of pop up on the surface. (As explained to me by the
ultrasound technician).
Of course, that doesn't work if the fetus is implanted at
the top (the fundus, between the input openings of the
fallopian tubes).
Later in the pregnancy, the baby is fairly obvious :-)
Pat
|
362.46 | | MACNAS::BHARMON | KEEP GOING NO MATTER WHAT | Fri May 14 1993 06:16 | 10 |
| Owing to all my problems trying to get pregnant, my specialist gave
me an ultrasound at 6 weeks, just after I found out I was pregnant,
to see was Daniel in the right position. He then gave me ultrasounds
at 10 and 12 weeks. After that he put me under the care of a
regular gyn and I had my next ultrasound at 18 weeks. No more till
I was 42 weeks, the day before I was induced, and eventually had a
c-section.
Bernie
|
362.47 | nit | MCIS5::WOOLNER | Your dinner is in the supermarket | Fri May 14 1993 11:40 | 3 |
| re .45, the fundus is the *bottom* of any given organ...
Leslie
|
362.48 | I would like another opinon | RINGER::WALTER | used to be Aquilia | Wed May 26 1993 13:51 | 14 |
| Well, I just got back from my fifth month appointment and the doctor
said NO to an ultrasound. He says that (and showed a letter from the
President confirming also) that Harvard Community Health Plan (HMO)
will not cover unless there is a specific need for one. He said that
because I am gaining the appropriate amount of weight and have a strong
heartbeat that there should be no need to waste the insurance money.
He also stated that they are unsure if ultrasounds will cause damage.
He mentioned that in ten years who knows if some grown boys and girls
will have hearing and eye damage.
I am still not pleased with the results, but what else can I do?
cj
|
362.49 | | RICKS::PATTON | | Wed May 26 1993 14:34 | 9 |
| That comment from the doctor about possible harm in ten years from
ultrasounds seems irresponsible to me. Would he have said those words
to someone whose medical situation required lots of ultrasounds? I'd
like to hear his reasons for such a comment. Sounds like he should have
stuck to the cost/benefit aspect of the decision.
Sorry for the tangent.
Lucy
|
362.50 | what! no ultrasound! | CALS::HEALEY | DTN 297-2426 | Wed May 26 1993 14:56 | 12 |
|
re: .48
I have Harvard too and when I was in for my 8 week appointment, the Dr
told me that they don't do ultrasounds routinely but that I could request
one. I had intended to request one at around 18-20 weeks.
Is this a new policy that just went into effect? I have my 12 week appt
tonight (and will hopefully hear the heartbeat) so I'll have to ask about
this!
Karen
|
362.51 | move 3000 miles!! | LINGO::MARSH | The dolphins have the answer | Thu May 27 1993 04:57 | 9 |
|
Move to the UK while we still have a Free Health Service :-)
Saying that in 10 years damage to ears etc may be found is a complete
red herring. Ultra-sound has been used for years both in and outside the
medical field with no known side-effects.
Celia (who is mighty glad she lives the other side of the pond)
|
362.52 | | CALS::HEALEY | DTN 297-2426 | Thu May 27 1993 09:53 | 9 |
|
re: .48
I was at Harvard in Southboro last night and asked about ultrasound. I
got no indication that the policy had changed. That doesn't necessarily
mean anything since Southboro Medical group serves other than just Harvard
and I think I forgot to mention that Harvard was my HMO.
Karen
|
362.53 | comments on the comments | RINGER::WALTER | used to be Aquilia | Thu May 27 1993 11:09 | 14 |
| Lucy - I agree with you about the comment. I had two ultrasounds done
in October because of a cyst on my ovary and nothing was mentioned
about possible problems ... course I wasn't pregnant either.
I am going to call the Harvard Community Health Plan today. I was told
that he, my doctor, had no problem doing one but that I would have to
pay because its the insurance that isn't allowing them anymore.
Karen, I didn't see the date on memo regarding the policy in
ultrasounds. However, I have talked to other women who recently had
children in the last year and they did warn me about the changes with
insurance and ultrasounds.
cj
|
362.54 | | SPEZKO::BELFORTI | P-name set hidden | Thu May 27 1993 15:54 | 5 |
| I had 2 (or was it 3???) ultrasounds almost 18 years ago.... and have a
perfectly healthy daughter... who, by the way, has no physical problems
from the ultrasound either!
M-L
|