| I too, was diagnosed with CEBV two years ago after three months
of testing, minor surgery and two weeks hospitalization. At the
end of three months with no diagnosis and barely the ability to
get out of bed and care for my family and home, I took myself into
the Lahey Clinic. Extensive blood work was done and sent to the
Mayo Clinic which finally gave me the diagnosis of CEBV. I was
told that there is no cure, drug therapy or anything other than
rest that would help me. I was surprised to learn in this notes
file that pregnancy could be affected adversley. I am of childbearing
age and was planning to have more children. I will research this
further.
I do have flare-ups from time to time -- fatigue, sore throat, swollen
glands, etc. I was told to expect flare-ups from time to time.
I does hamper my busy lifestyle, but I cannot say that it has depressed
me to the point of needing counseling.
A point of interest -- A recent article I read (sorry, I don't remember
which magazine) indicated that Vitamin C is being used to help
with the symptoms. It also recommended the discontinuance of sugar
in any form in your diet. I have begun taking 500 mg. of Vitamin
twice per day and have cut down on my sugar intake. It has seemed
to help (psychomatic??).
I try to look at CEBV as an inconvenience -- not an affliction.
In my eyes, it could be worse.
|
| Excuse my vague offer, but I knew an exceptionally competant counselor
who had gotte his Doctorates in Pastoral Counseling from either
Boston College orBoston University.
I would expect they'd have a "referral list" of counselors available
(graduates ?) from which you could pick one. Also try the EAP (in
DEC ) for an appropriate referral. A couple of years ago I thought
I needed "some <vague>" type of testing for a "<vague>" problem,
and they steeered me to a Neurologist/Psychiatrist who specialized
in "Mental ability testing", and was quite pleased with the results.
This is to illustrate the competancy of the refferral, and not to
suggest anything else.
Bob+3
|