| Title: | Topics Pertaining to Men |
| Notice: | Archived V1 - Current file is QUARK::MENNOTES |
| Moderator: | QUARK::LIONEL |
| Created: | Fri Nov 07 1986 |
| Last Modified: | Tue Jan 26 1993 |
| Last Successful Update: | Fri Jun 06 1997 |
| Number of topics: | 867 |
| Total number of notes: | 32923 |
Our daughter ,Vanessa, was born 19-12-90 with a problem with her heart. Without going into too many details, the doctors decided that they had too implement a pacemaker because her natural heartbeat is around 50. With the pacemaker they will bring it up to around 100. The first operation failed, because the pacemaker they implanted turned out to be too big (she was only 2 kg 400 when she was born), so they had to remove it. After two more operations , they finally implanted another pacemaker this week which weighs 20 grams and lasts 10 years. The doctors told us that they phoned all over the world, to find the smallest pacemaker they could find and they also took advice all over the world how to handle this case. When we asked, how frequent such a case was, they answered that it certainly wasn't very common, but also not unique. However, after the first failure, we really start wondering how exceptional this case really is. We have bought some books about pacemakers, but all of them talk about pacemakers on adults, and most of them only on the technical details of the device, but not on how do you LIVE with a pacemaker. So I am posting this note, in the hope to reach a large audience and get as many 'first hand experiences' from people that are actually living with a pacemaker, or even better , experiences with pacemakers on children (or even more rare, baby's). So my questions are: -Do you know of anybody who has a child with a pacemaker and what age does he/she have -how does he/she live with the pacemaker. What things cannot she do or should be avoided. -How long do you have the pacemaker -Any other useful information on the do's and don'ts for people that live with a pacemaker? Any info is highly appreciated. Timo PS: After almost 4 months continuously in the hospital, Vanessa is recovering now from the last operation. See weighs now 4 kilo's and we hope that the operation has succeeded this time . We really hope to have her at home before the end of april. I'll keep you posted. (Posted in mennotes and womannotes)
| T.R | Title | User | Personal Name | Date | Lines |
|---|---|---|---|---|---|
| 579.1 | QUARK::LIONEL | Free advice is worth every cent | Wed Apr 03 1991 19:25 | 6 | |
Some conferences you might also try: NOTED::PARENTING VMSZOO::MEDICAL Steve | |||||
| 579.2 | thanks for the pointer | CLARID::HOFSTEE | Take a RISC, buy a VAX | Thu Apr 04 1991 10:41 | 3 |
Thanks, I'll crosspost it there. T. | |||||
| 579.3 | PELKEY::PELKEY | With a third less polyunsaturates | Thu Apr 04 1991 15:39 | 20 | |
My Duaghter is going to be 10 on April 23. She's quite the character. I think Melony was dealt the fatal blow in life be being born after her Brother Shawn. Gawd these two get on each others nevers. But, Shawn, seems to be the greasy wheel in the family. Get's the most grease. We quietly try to give Melony a fair shake, but Shawns so boisterous, he seems to always get the upper hand on somethings. But Melony gets even, She knows exactly what puttons to push, and oh can she bait her brother. (shawn will be 12 this fall) But Melony if anything else, is a cuddle montster. She's always looking for a hug, some affection, which I give freely. I love this little kid to death. But she's not the easiest person to get along with. Sometimes she drives her mother crazy with her ways. But I just laugh... When I'm having a bad day, sometimes, Melony will notice it before my wife and ask me whats the matter. She's a gentle kind little soul. | |||||
| 579.4 | news on pacemaker planted in a little girl | HANDVA::MICKWIDLAM | What a dam_ day! | Mon Apr 08 1991 03:35 | 8 |
re .0
I have read a new from Britain about a new born little girl planted
a pacemaker in her heart. Is this related to you Timo? If you need,
I will try to translate it and type here (the article is in Chinese).
Mickwid from Hong Kong.
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| 579.5 | must be another one | CLARID::HOFSTEE | Take a RISC, buy a VAX | Tue Apr 09 1991 18:31 | 17 |
No, I don't think so , since I am living in the south of France. And the pacemaker is not implanted INTO her heart but placed close to it. However, if they really did such an operation it might indeed be the first time. Actually, some weeks ago (so several months after Vanessa got her first implant) there was an article here in a local newspaper about a baby born in Spain that had pacemaker implant and it was presented as a world 'premiere'. But the doctors (who also had read the newspaper) told me that this was nonsense and that it had been done already before on several occasions . (But than also sunday newspapers have to be filled ,don't they) Now if it is not too much work I really would appreciate if you could type in the article Thanks Timo_(who doesn't speak chinese yet) | |||||
| 579.6 | sorry... | HANDVA::MICKWIDLAM | What a dam_ day! | Tue Apr 09 1991 22:56 | 10 |
Oh, isn't it?
Very very sorry I cannot help.
paix � toi
Mickwid.
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